Craniosynostosis is a rare birth defect correctible with a controversial surgery. The surgery removes bone from the skull of the affected baby and averts potential brain damage or death. But it is deemed cosmetic and elective causing parents much confusion. Trevor Baierl sits down with Kase Johnstun (author of “Beyond the Grip of Craniosynostosis”) to help inform the public about the birth defect and life since they both received the controversial surgery over 40 years ago.
Directed by Trevor Baierl (USA)